The Cerebral Palsy Research Network (CPRN) webinar series seeks to educate the community on its findings and directions in research. One webinar per month is presented to provide an update on its current research. The webinars will be presented by the principal investigator conducting the research and include 20 minutes of presentation and 20 minutes of open Q&A. Interested participants must sign-up for the webinar. These webinars will not only provide an excellent opportunity to learn about important new study topics but also to interact with the clinicians conducting these research projects. Webinars will occur on weeknights at 8 pm ET. All webinars are recorded and posted for future viewing.
|Preliminary Report from the CPRN Adult Registry||Mary Gannotti, PT, PhD||Wednesday, March 25, 8 pm ET|
|Report from the CPRN Clinical Registry||Garey Noritz, MD||April 23, 8 pm ET|
|Cerebral Palsy and Epilepsy||Adam Ostendorf, MD||May 5, 8 pm ET|
|Practice Variation in Spasticity Management for Diplegics||Paul Gross||June 2, 8 pm ET|
|Interview with author Lily Collison about her book on Spastic Diplegia||Lily Collison and Paul Gross||July 8, 8 pm ET|
|Genetics and cerebral palsy- what difference does it make?||Michael Kruer, MD||July 23, 8 pm ET|
|Priority based Patient Reported Outcome Measures to facilitate Shared Decision Making in Cerebral Palsy||Unni Narayanan, MD, MSc||August 17, 8 pm ET|
|Functional Improved Related to Spasticity Treatments||Kristie Bjornson, PT, PhD||September|
|Speech and Participation||Kristen Allison, PhD||October|
|Family Attitudes About CP Diagnoses||Bhooma Aravamuthan, MD, DPhil||November|
MyCP is a web portal that provides the extended community of people with CP including caregivers and providers an open forum to discuss research, participate in research and read about the latest efforts led by CPRN.