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MyCP Webinar Series

The Cerebral Palsy Research Network (CPRN) webinar series seeks to educate the community on its findings and directions in research.  One webinar per month is presented to provide an update on its current research.  The webinars will be presented by the principal investigator conducting the research and include 20 minutes of presentation and 20 minutes of open Q&A.  Interested participants must sign-up for the webinar. These webinars will not only provide an excellent opportunity to learn about important new study topics but also to interact with the clinicians conducting these research projects.  Webinars will occur on weeknights at 8 pm ET. All webinars are recorded and posted for future viewing.

Subject Speaker Date
Preliminary Report from the CPRN Adult Registry Mary Gannotti, PT, PhD Wednesday, March 25, 8 pm ET
Report from the CPRN Clinical Registry Garey Noritz, MD April 23, 8 pm ET
Cerebral Palsy and Epilepsy Adam Ostendorf, MD May 5, 8 pm ET
Practice Variation in Spasticity Management for Diplegics Paul Gross June 2, 8 pm ET
Interview with author Lily Collison about her book on Spastic Diplegia Lily Collison and Paul Gross July 8, 8 pm ET
Genetics and cerebral palsy- what difference does it make? Michael Kruer, MD July 23, 8 pm ET
Priority based Patient Reported Outcome Measures to facilitate Shared Decision Making in Cerebral Palsy Unni Narayanan, MD, MSc August 17, 8 pm ET
Functional Improved Related to Spasticity Treatments Kristie Bjornson, PT, PhD September
Speech and Participation Kristen Allison, PhD October
Family Attitudes About CP Diagnoses Bhooma Aravamuthan, MD, DPhil November

MyCP is a web portal that provides the extended community of people with CP including caregivers and providers an open forum to discuss research, participate in research and read about the latest efforts led by CPRN.

Past Webinar Recordings

  • Adult Registry: Preliminary ReportHealth and Wellbeing, by Dr. Gannotti
  • Report from the CPRN Cerebral Palsy Registry, by Dr. Noritz
  • Cerebral Palsy and Epilepsy, by Dr. Ostendorf
  • Practice Variation in Spasticity Management, by Mr. Gross
  • Interview with author and mother Lily Collison, by Mr. Gross
  • Genetics and Cerebral Palsy, by Dr. Kruer
  • Can we make patient reported outcome measures useful for patients and families?, by Dr. Narayanan
  • Speech and Language Predictors of Participation, by Dr. Allison
  • Surgical Spasticity Management for Children who are Not Ambulatory, by Dr. Thomas

Contact Us

Paul Gross, Chairman
Cerebral Palsy Research Network
University of Utah
Williams Building
295 Chipeta Way, Room: 1N455
Salt Lake City, UT 84108

Phone: 402 302-CPRN (2776)
Email: paul@cprn.org

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