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CPRN Investigator Funded for Feasibility Study

Posted on October 8, 2020
by Paul Gross
2 Comments
Dr. Ed Hurvitz, Chair of Physical Medicine & Rehabilitation, University of Michigan

Dr. Ed Hurvitz, Chair of Physical Medicine & Rehabilitation, University of Michigan

Edward A. Hurvitz MD of Michigan Medicine, University of Michigan and Cerebral Palsy Research Network (CPRN) Executive Committee, was awarded the Foundation for Physical Medicine & Rehabilitation Gabriella Molnar grant for a project entitled “Feasibility of Adding Grip Strength Measures to Body Composition Assessments in Individuals with Cerebral Palsy.”  The aim of the project is to test the feasibility of adding measures such as waist-hip circumference, skinfold measures, and grip strength to a regular clinic appointment for individuals with cerebral palsy (CP) from age 8 through adulthood, and then potentially as data points in the CPRN CP Registry.  The Michigan Adults with Pediatric Onset Disabilities research group has published extensively on chronic disease risk in adults with CP.  Body composition and grip strength are well documented indicators for risk of morbidity and mortality in typical developing populations, and obesity has been associated with risk of multi-morbidity in adults with CP, including young adults between ages 18-40.  The study will also include a history of chronic disease with an exploratory aim to correlate body composition and hand grip findings to history.

CPRN congratulates Dr. Hurvitz and his colleagues for their success in funding this research which was originally approved as a concept for CPRN in April 2019. This study addresses top priorities from Research CP, including the study of the effects of aging with cerebral palsy as well as laying the groundwork to do studies of exercise strategies to promote better health outcomes.  Co-investigators on the study include Drs. Mark Peterson, Dan Whitney, Heidi Haapala, Mary Schmidt, Angeline Bowman and Jessica Pruente. The funding amount is $10,000 dollars, to be used for measurement equipment and research assistance.  The start date is December 1, and the study is planned for 18 months.

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  • Adult Registry: Preliminary ReportHealth and Wellbeing, by Dr. Gannotti
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  • Cerebral Palsy and Epilepsy, by Dr. Ostendorf
  • Practice Variation in Spasticity Management, by Mr. Gross
  • Interview with author and mother Lily Collison, by Mr. Gross
  • Genetics and Cerebral Palsy, by Dr. Kruer
  • Can we make patient reported outcome measures useful for patients and families?, by Dr. Narayanan
  • Speech and Language Predictors of Participation, by Dr. Allison
  • Surgical Spasticity Management for Children who are Not Ambulatory, by Dr. Thomas

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