The Cerebral Palsy Research Network (CPRN) has announced a new webinar series to educate the community on its findings and directions in research. It will offer one webinar per month to provide an update on its current research. The webinars will be presented by the principal investigator conducting the research and include 20 minutes of presentation and 20 minutes of open Q&A. Interested participants must sign-up for the webinar. These webinars will not only provide an excellent opportunity to learn about important new study topics but also to interact with the clinicians conducting these research projects. Webinars will occur on weeknights at 8 pm ET.
The first webinar, scheduled for Wednesday March 25, is focused on the preliminary findings from the adult registry that was launched last year. It will be presented by Dr. Mary Gannotti who has led the development of the study in conjunction with several clinicians who treat and study adults with CP in addition to help from the CPRN Adult Community Advisory Committee.
The webinars scheduled for the rest of the year include:
|Preliminary Report from the CPRN Adult Registry||Mary Gannotti, PT, PhD||Wednesday, March 25, 8 pm ET|
|Report from the CPRN Clinical Registry||Garey Noritz, MD||April|
|Cerebral Palsy and Epilepsy||Adam Ostendorf, MD||May|
|Practice Variation in Spasticity Management for Diplegics||Paul Gross||June|
|Functional Improved Related to Spasticity Treatments||Kristie Bjornson, PT, PhD||July|
|Practice Variation in Spasticity Management for Children who are not Ambulatory||Sruthi Thomas, MD, PhD||August|
|CP Genetics||Michael Kruer, MD||September|
|Speech and Participation||Kristen Allison, PhD||October|
|Family Attitudes About CP Diagnoses||Bhooma Aravamuthan, MD, DPhil||November|
MyCP is a web portal that provides the extended community of people with CP including caregivers and providers an open forum to discuss research, participate in research and read about the latest efforts led by CPRN.