The Cerebral Palsy Research Network (CPRN), owner of MyCerebralPalsy.org and network of hospitals and universities collaborating on advance cerebral palsy research, approved four new study concepts in the past month. Study concepts are a significant milestone in advancing CPRN’s multi-center research. An approved concept is developed in to a complete study and grant application in the months following a concept approval.
The concept areas included two focused on spasticity management — one for kids that can walk (including with assistance) and another for kids that require wheel chairs for mobility. A third is focused on physical therapy (PT) dosage after single event multi-level surgery — a surgery in which bones are de-rotated and muscles are lengthened — to find the optimal does of PT to have the best outcome. The forth is focused on body composition across the lifespan and alternative measurements of strength which is an important indicator of outcomes and abilities.
While these are just at the concept phase, several of these concepts are seeking grant funding this fall. These studies will complement the six studies CPRN already is conducting in cerebral palsy including our recently launched adult study that is based here in MyCP. To keep a closer watch on the efforts of CPRN, you can follow our work here.